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Stories From the Edge of Blindness

In 2002, Retinitis Pigmentosa changed my life. This is my story of a slow approach to darkness.

Category

Mental Illness

Do a Little Dance

My Mom was a colourful and effervescent person. She shined more brightly than anyone I have ever known and expressed unapologetic interest in things that propelled her down less travelled paths. She was in a coven, painted banners for the... Continue Reading →

“Things My Mother Left Behind” Available for Pre-Order

I am sitting in my very quiet writing space, typing this in a state of simultaneous disbelief and total joy. I am thrilled beyond the sky to announce that my book, "Things My Mother Left Behind", is available for pre-order,... Continue Reading →

Untethered

I was in the car with my husband yesterday, Thomson Twins jangling in the background, when I started to think of what it means to be untethered.  I am parentless, floating without the anchors that rooted my bones to the earth,... Continue Reading →

The Return of Darkness

I have been away,  under the skin of darkness.  I intended to bring along pen and paper, do a bit of blood-letting, record my thoughts; instead, I brought a bottle, numbed out and dreamed of becoming  someone else.  I curled... Continue Reading →

Beware the Adjective

I have had the good fortune, in my writing life, of having mentors who chose to share parcels of writing advice that I keep with me as I travel this crazy path I have chosen.  I know I will have... Continue Reading →

Cloaked

Today began long before it should have.  I woke up with that feeling that always returns, that feeling of my breath being unbearably heavy in my chest.  I begin to question everything.  I become saturated in the desire to disappear.... Continue Reading →

Earth and Sky

The sky offers me value, a sense of worth, a shroud to cover all the secrets that can never be told. The old thoughts, the familiar ones, appear like petals that soften the earth, give a fragrance that draws me... Continue Reading →

The Outside of Everywhere

I linger on the outside of everywhere. I am a skulker, a bone shucker, a fraud.  I slip behind curtains, under floorboards, into panes of glass that mute my words.  I am awkward and stumble more than I stand tall.... Continue Reading →

How Do I Get Out Of Here

I didn't start this month thinking I would be writing about mental illness, but I have been so encouraged by the bravery of other writers sharing their experiences, I feel the need to share my own, with the hope that... Continue Reading →

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