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Stories From the Edge of Blindness

In 2002, Retinitis Pigmentosa changed my life. This is my story of a slow approach to darkness.

Month

January 2018

At Home in the Darkness

In the past few months, years after the inception of "Stories from the Edge of Blindness", I started to really explore the blogging world rather than just stand on the outside in abject terror, feeling like a loser.  I started... Continue Reading →

Stuck in the Escape

I feel sad this morning.  It isn't new, feeling sad and writing about sadness; I do that a lot.  But, today it isn't just sadness, or darkness or blindness, that is in my head and on my skin, it is... Continue Reading →

Genetics and RP

I am, by no means, an expert when it comes to the science of RP, but I want to try to explain the bits that I do understand.  Anyone who has RP and reads my blog, please don't hesitate to... Continue Reading →

On the Edge

This has been a monumentally good week for me in regard to my vision.  Finding out that I will likely maintain enough sight to be able to read and write and see the faces of those I love, has altered... Continue Reading →

The Good News and the Bad News (which really isn’t so bad)

I am so incredibly grateful and overwhelmed for the outpouring of care and support I have received since my last post.  I am a lucky woman! This has been a month of having my whole body poked and prodded and... Continue Reading →

The Goodness of People

I was trying to keep to a self enforced schedule of posting on Sundays and Wednesdays, but this is a weird week for me, so here I am on a Tuesday. And, this post may be a bit all over... Continue Reading →

Contemplating the Water

My Dad lives across town and when I visit him, usually a couple of times a week, I often take the bus to UCLA and he picks me up by the medical buildings.  I was walking to meet him the... Continue Reading →

Sidlak Poetry

Sidlak poetry (sid/lak) is a structured poetry consisting of 5 lines with 3-5-7-9syllables AND A COLOR. The last line must be a COLOR that describes the whole poem or the feelings of the writer. I just learned about Sidlak poetry... Continue Reading →

Bad Eye Day

Almost every RPer I have met has bad eye days; my bad eye days are most often due to light exposure or over use of my eyes.  I have been thinking about this lately because I have gotten some questions... Continue Reading →

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