Stories From the Edge of Blindness

In 2002, Retinitis Pigmentosa changed my life. This is my story of a slow approach to darkness.


June 2012


I have been feeling incredibly defeated since a recent family gathering. Defeated by my inadequacies, by my failing sight and my 40 extra pounds.  I have been abandoning myself, night after night, to the comforts of Cabernet and waiting to... Continue Reading →

Of All the Super Powers…….

When people get up the courage to ask me questions about what it's like to be going blind, one I get a lot is" do your other senses get stronger as your sight gets weaker "? It is as if... Continue Reading →


I think I have always been rather forgettable.  I even got a disease that people seem to easily forget.  I attended a family function recently and had to leave early because of problems with my eyes, and everyone but my... Continue Reading →

Reflections off Water

My husband and I took a whirlwind journey this weekend to attend a family function and I have to say I wish I could have left my RP at home. We live in Los Angeles and the event was in... Continue Reading →

Blog at

Up ↑