I think I have always been rather forgettable. I even got a disease that people seem to easily forget. I attended a family function recently and had to leave early because of problems with my eyes, and everyone but my husband seemed surprised by this. I think my family often forgets that I am going blind as they often seem to have forgotten about me in general, for as long as I can remember.
I am the youngest of three children, the oldest of whom is a veritable super star and the middle who has been plagued by illness since he was 18. I was conceived to save a failing marriage and failed in this task I was born to. I have always been not quite pretty or smart or memorable, and never really wanted so left to my own devices. Although sad in some respects, I have been afforded the freedom to have all kinds of fun and to live a life of pure and unadulterated self-expression.
I am in my forties and married to a wonderful and boisterous Irishman. I am heavily tattooed and change my hair as it suits my mood. I never followed a specific career path, even though I come from doctors and lawyers and general success types. I have lived all over the country and claimed a dozen professions. I am an artist and an individual, but in my family I am the shadow who gets the passing glance and is as quickly forgotten.
My family, when thrown together, forgets that I am around and forgets that I am going blind, but I don’t have that luxury. I live every day knowing that my eyes are failing me and that I no longer have the luxuries of driving or working or being able to walk through the world with any kind of grace or ease. I suppose that between my sister, who is constantly revered and celebrated and my brother, who is a constant patient, there is just nothing left for a shadowy girl who has never been much of anything. In my family, if you don’t stand out, you don’t stand a chance.
I have dreamed of disappearing and running away. I plot ways to get out of family functions. If I don’t show up, I won’t be missed. And if I do, I will be brushed to the side and forgotten. But, I feel guilty if I don’t show up. I don’t want to hurt anyone, but then no one even knows I am there. I can’t win and so far I haven’t found a way to escape. I suppose what I can do, what I have always done, is to simply write. I write about family and shadows and I write about going blind.
I write about going blind because I cannot forget. I write about going blind because it is part of the fabric of who I am, who I have become and who I will be . I write about going blind because it is my reality and my strength and my fear. I write about going blind because it is my truth, but no one in my family reads what I write or subscribes to this blog. I am an after thought. A back burner disaster. Nothing.
June 6, 2012 at 6:59 am
You have a wonderful husband and freedom to express yourself. Concentrate on the good stuff. It seems your family has more problems than you do. They are to be pitied, to treat you and your disability as if neither of you exist, makes them very small.
I have RP too and have learned to let people think what they want to think. And I don’t go to every family function that’s goin on either.
June 6, 2012 at 12:03 pm
Hi Rachel –
I totally agree that I need to concentrate on the good stuff. I always feel a bit bad after posting a blog about my family because there are people in my family who are really amazing and supportive, but my husband says that if what I write is a true expression of my feelings, then I need to write it. There is just something about the family as a group together that sucks me right back into 40 years of feeling like I am nothing. I think I need to choose not to attend every family function. Thank you for you supportive, kind and wise words.
February 16, 2019 at 5:20 pm
As Demi Moore said in A Few Good Men, I strenuously object. You are far from forgettable. If you were I wouldn’t have gone back in the internet time tunnel to discover your story from its beginning. Along the way I’ve watched your blog gain more comments and followers and become engaged in what you have to say and your artistry in weaving your story. .
If it’s any consolation, apart from Cora, my family and friends pretty much ignore my blog. I just don’t get it. One would think that one’s domestic circle would embrace one’s blog.
Oh and by the way, I’m jealous of the heavily tattooed part. I desperately want a tattoo of a wolf but I’m on blood thinners.
February 17, 2019 at 7:55 am
Thank you so much, Paulie! I am still totally amazed that you are reading all of this. My blog has changed so much since it’s inception, as my life and my writing changed. I hope you don’t get impossibly bored at the repetition I know must be coming.
I feel the same way about my family circle and my blog. Joe reads it and my Dad has also on occasion, but that is it. Sometimes support comes from the places we least expect and it is such a gift.
I never planned to be so tattooed, but I started and couldn’t stop. It has been a few years, as my friend and artist moved to a shop that is a bit of a drive from my house, but I am turning 50 this year and I am determined to get something new! I have a friend who is on blood thinners and is planning a tattoo. I will see if I can get some information from her about how she goes about it. That wolf may be in your future yet!!!!!
December 5, 2019 at 7:23 am
This is the most wonderful surprise! Thank you so much for sharing my blog, for your generosity and kindness. I am very grateful!