I have always hated bright sunny days, and the older I got the more I avoided being outside. I waited for the rare cloudy day to grace my Los Angeles home and longed to live under cover of darkness. I... Continue Reading →
On the day of my formal introduction to Retinitis Pigmentosa (from here on out affectionately referred to as RP), I woke up to a chilly five a.m. alarm, took a quick shower, threw on lounge around the Eye Institute clothes,... Continue Reading →
So, you may be thinking to yourself, what the hell kind of name is Heckenlively and what sort of man could be its carrier, so to speak. When I heard the name, I knew I would never forget it.....it is... Continue Reading →
The first time I heard about RP was from a story on 20/20 when I was a kid. Barbara Walters told the tale of a family - I remember all the kids looked like they spent a lot of time... Continue Reading →
So I thought I might give a little overview of RP (Retinitis Pigmentosa), and then wondered, do I give a textbook definition or a behind the scenes definition; I opt for behind the scenes. Basically, having RP means that I... Continue Reading →