So I thought I might give a little overview of RP (Retinitis Pigmentosa), and then wondered, do I give a textbook definition or a behind the scenes definition; I opt for behind the scenes. Basically, having RP means that I am going blind from the outside, in. I am losing my peripheral vision at an unpredictable rate, and for this there is no treatment, no cure, no answers. My retinal cells are dying, with no hope of resuscitation. I may be completely blind in a year, or ten years, or thirty years; I may or may not lose my vision completely. RP is a waiting game with no time table and constant challenges. RP is the enemy that I cannot fight, but that doesn’t mean that I give up……not today anyway.
I am a writer, going blind in Los Angeles. This blog is my story of a slow approach to darkness as I traverse through the rubble of urban life. It is what I see in the withering spaces of my remaining vision. It is humor and despair and darkness and light. It is what I witness as the world slowly disappears.
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