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Stories From the Edge of Blindness

In 2002, Retinitis Pigmentosa changed my life. This is my story of a slow approach to darkness.

Month

August 2023

The Body is a Cage

I walk up the stairs at midnight, sleepy, hopeful. Before I reach the top, anxiety has begun to snake its way up the back of my neck. I am wide awake, heart beating too fast, blood running hot. Exhaustion has... Continue Reading →

Weakness is a Secret

I am feeling the familiar sting of being different, of never quite fitting. The cloud in an otherwise clear sky is my echo, the storm my paramour, my comrade, my undoing. I try to step quietly, to blend into the... Continue Reading →

Rainy Days

I wake to a grey day, breathe it in slowly, deeply, feel encapsulated. I am content, safe. I open the window to let the drops touch my face, close my eyes, smile filling up the room. I am grateful to... Continue Reading →

When the Sky Breaks

There is a weight that comes over me, an unexplainable heavy feeling, as if the sky has broken, fallen into my bones, flooded my eyes, my thoughts, my throat. I try to understand it, to explain it to Joe, but... Continue Reading →

Poetry this Good Needs to be Shared

https://missyerem.wordpress.com/2023/08/04/meet-the-poet-julie-stevens/

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