I recently saw my retinal specialist, who told me that my vision remains stable. I have had stable vision now for about 7 years, and I know that in the world of RP I am extremely lucky. And, that piece of good fortune does make me happy, but then I go outside where my disease still swallows the edges of the world and daily collisions remind me that I am defective. I still live in this purgatory of sight; not a sighted person, not a blind person, but just someone in the invisible in-between. I still feel trapped; not trusted to take care of myself or go places on my own. I still feel afraid; of the darkness and everything that is waiting to blind side me. I still feel useless; unable to do daily life things like work or run a quick errand. I still have RP. Nothing has changed.
