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Stories From the Edge of Blindness

In 2002, Retinitis Pigmentosa changed my life. This is my story of a slow approach to darkness.

Tag

white canes

Zelda, Persephone and Maud

When I started writing my blog, it was going to be a story solely about blindness, but as the years have progressed, I have discovered that the story of my blindness is the part that weaves itself into the whole,... Continue Reading →

Everyone Falls

Everyone falls.  Everyone daydreams and falls into states of preoccupation, falls into the arms of another person, falls to the ground.  Can you remember the last time you fell to the ground?  I know it happens, but how often?  Is... Continue Reading →

That Kind of Day

I had leftover sweet potato fries for lunch.  Yeah, it's that kind of day.  I can't focus.  The city is bumpy and screeching outside my windows and I can smell summer approaching. I know that spring has only recently officially... Continue Reading →

The Light Conundrum

One of the first signs of RP is night blindness. The retinas are responsible for registering and responding to light, so when you have RP and your retinal cells are dying, they can't tell your pupils to contract or expand... Continue Reading →

Reluctant Side Kick

*To new readers: When I refer to Zelda (or Z), I am writing about my white cane.  Thank you for reading "Stories from the Edge of Blindness" Reluctant Side Kick Zelda and I have reconciled, again.  I suppose we are... Continue Reading →

Encased in Glass

Welcome to "Stories from the Edge of Blindness".  For those of you who are new readers, when I refer to Zelda (or Z), I am referring to my white cane. Encased in Glass My neighborhood has gone insane.  It has... Continue Reading →

#11 On our Own

Two days ago, I was visiting my Dad, and my StepMom got really sick.  So sick, we had to take her to the emergency room. She is totally fine now, but in the chaos of getting her to the ER,... Continue Reading →

#10 Prolonged

I imagined that the end of my mobility training would have clear and dramatic lines, but the end has been prolonged and is petering rather than exploding. I took Tamar to lunch on Thursday, to thank her and to say... Continue Reading →

ERG – Take 2

The day of my RP diagnosis was filled with different tests, including an ERG (Electro Retina Gram), which tests the retinas response to light.  It was by far the most grueling of the tests that day ( I wrote about... Continue Reading →

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