Stories From the Edge of Blindness

In 2002, Retinitis Pigmentosa changed my life. This is my story of a slow approach to darkness.


Surviving serious illness


I am silenced by grief, by shadows and blindness and the infernal heat wave that coats my city like an itchy, heavy blanket.  In my mind I am a writer, but in reality, I feel myself coming unhinged.  I try... Continue Reading →

Silent Disease

I have begun to think of RP as not only an invisible disease but a silent one as well.  I don't generally  have the tendency to feel sorry for myself or to draw a lot of attention to the fact... Continue Reading →

A Little More Each Day

I have been having a hard time finding the motivation to write lately.  My heart is breaking. My brother was diagnosed with a very serious illness in May of this year, had surgery in July and has been suffering from one complication after another ever since.  I go... Continue Reading →


We all have heroes; people we look up to for their courage, kindness and strength.  One of my heroes was just three years old when I was born.  He is my brother John. John has always been one of the... Continue Reading →

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