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Stories From the Edge of Blindness

In 2002, Retinitis Pigmentosa changed my life. This is my story of a slow approach to darkness.

Tag

self perception

Silent Disease

I have begun to think of RP as not only an invisible disease but a silent one as well.  I don't generally  have the tendency to feel sorry for myself or to draw a lot of attention to the fact... Continue Reading →

Defeated

I have been feeling incredibly defeated since a recent family gathering. Defeated by my inadequacies, by my failing sight and my 40 extra pounds.  I have been abandoning myself, night after night, to the comforts of Cabernet and waiting to... Continue Reading →

Forgettable

I think I have always been rather forgettable.  I even got a disease that people seem to easily forget.  I attended a family function recently and had to leave early because of problems with my eyes, and everyone but my... Continue Reading →

Before the Darkness

Today I read a fellow  bloggers post (please see the link to her blog, narrowing world,  in my blog roll) about things she would like to see before she loses her sight completely.  It made me reflect on something that... Continue Reading →

So Far Beyond Writers Block

I haven't written a word in ages.  Not a blog post or a letter or even a grocery list.  I try to read other blogs about writer's block and books about writing tools, but I think what I  have isn't... Continue Reading →

Creative Blind Chick

When I was diagnosed with RP, I remember feeling lucky that I wasn't a painter or a photographer and that my particular creative outlet wasn't reliant on my eyes.  I had never been very good at hands on creative expression... Continue Reading →

Avoidance

I have been avoiding a lot lately; my writing, people, my blindness.  I feel my vision deteriorating and all the symptoms that come with RP seem to be screaming at me to pay attention, but instead I have a few... Continue Reading →

Useless

One of the most overwhelming feelings for me in connection to RP is uselessness, and a lot of it stems from the fact that I can't drive.  As I have written and written, Los Angeles is a city of cars;... Continue Reading →

Morning

My eyes burn, feel swollen and starched this early in the morning.  The light through the curtains is like an assault. It is as if all the color and texture in the world has been bleached out. It is the... Continue Reading →

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