Search

Stories From the Edge of Blindness

In 2002, Retinitis Pigmentosa changed my life. This is my story of a slow approach to darkness.

Tag

self perception

Leisure

RP has thrown me into a life of leisure.  It sounds decadent,  but has felt confusing and burdensome.  It has been a struggle for me to brush off the restraints of socialization and embrace the time that RP has afforded me.... Continue Reading →

Pillars and White Canes

I am a walking disaster. The bruises on my arm and hand and legs, and the bump on my head, remind me that I can't just walk through the world as if I am graceful, as if I can see.... Continue Reading →

Buzz Kill

The first time I got really drunk, I was 13.  I stole 2 bottles of wine from my mom's plentiful collection and ran off in the dark to hang out at the junior high school with my friend Jean.  I... Continue Reading →

Poetry and Blindness

  I realize that I am a rubbish blogger, tweeter, instagrammer and facebooker.  I go along feeling as if I have just written a blog post and when I visit my site, I find it has been months since I... Continue Reading →

Fitting

I have always lived under a veil of darkness, so it seems fitting to me that I am going blind.  Even as a child I drifted toward sadness.  When I was six, I was asked by my teacher to write... Continue Reading →

Fragile Threads

Life is always hanging by such fragile threads and I find myself carefully maneuvering through the tangled web they weave.  Always living in a whisper and treading ever so softly, so as not to upset the balance.  I am a... Continue Reading →

Disappearing

I haven't been writing, but my mind is ablaze.  My life feels so heavy and my voice feels choked and uncertain.  I may, at times, wish that I could disappear, but I wake each morning and find that I am... Continue Reading →

Lost Vision, Lost Voice

I haven't been writing at all lately.  No blog, no poetry, no stories....just nothing.  I feel as if I don't have much to say and when I search for my voice I find only silence and an emptiness that holds... Continue Reading →

Elation Eludes Me

I think I am seriously messed up.  I feel as if I should be elated to have learned that my RP is progressing so slowly, but instead I am feeling despondent.    It isn't as if I wanted to hear... Continue Reading →

Create a free website or blog at WordPress.com.

Up ↑