Search

Stories From the Edge of Blindness

In 2002, Retinitis Pigmentosa changed my life. This is my story of a slow approach to darkness.

Tag

self doubt

Lethargy

I am silenced by grief, by shadows and blindness and the infernal heat wave that coats my city like an itchy, heavy blanket.  In my mind I am a writer, but in reality, I feel myself coming unhinged.  I try... Continue Reading →

Fitting

I have always lived under a veil of darkness, so it seems fitting to me that I am going blind.  Even as a child I drifted toward sadness.  When I was six, I was asked by my teacher to write... Continue Reading →

Disappearing

I haven't been writing, but my mind is ablaze.  My life feels so heavy and my voice feels choked and uncertain.  I may, at times, wish that I could disappear, but I wake each morning and find that I am... Continue Reading →

Lost Vision, Lost Voice

I haven't been writing at all lately.  No blog, no poetry, no stories....just nothing.  I feel as if I don't have much to say and when I search for my voice I find only silence and an emptiness that holds... Continue Reading →

Thoughts of Returning to Work

I have been "retired", as my husband calls it, for a little over three years and on disability for almost as long.  I admit the transition to the retired life has been hard for me.  In my working life, I... Continue Reading →

Self Deprivation

I grew up in a family that praised the value of self deprivation.  The message was that the more you sacrificed,  suffered and deprived yourself of joy and pleasure, the better and stronger you would be.  This philosophy never made... Continue Reading →

Defeated

I have been feeling incredibly defeated since a recent family gathering. Defeated by my inadequacies, by my failing sight and my 40 extra pounds.  I have been abandoning myself, night after night, to the comforts of Cabernet and waiting to... Continue Reading →

Forgettable

I think I have always been rather forgettable.  I even got a disease that people seem to easily forget.  I attended a family function recently and had to leave early because of problems with my eyes, and everyone but my... Continue Reading →

Before the Darkness

Today I read a fellow  bloggers post (please see the link to her blog, narrowing world,  in my blog roll) about things she would like to see before she loses her sight completely.  It made me reflect on something that... Continue Reading →

Create a free website or blog at WordPress.com.

Up ↑