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Stories From the Edge of Blindness

In 2002, Retinitis Pigmentosa changed my life. This is my story of a slow approach to darkness.

Tag

self doubt

Stepping Back

April was a month full of the celebration of poetry, which was enlightening and exhilarating, but for me as a poet, it was a month weighed down by rejections.  March was the same.  I haven't had anything accepted for publication... Continue Reading →

Empty Case

Every Thursday night, I take my pugs, Blossom and Jade, to a playgroup at a local pet shop.  The group is referred to as  Yappy Hour and my girls love it.  I don't do the dog park thing, so this is... Continue Reading →

Life in Degrees

With my recent decline in vision and subsequent approval for mobility training, I have been retracing my RP life in degrees.  When I was diagnosed with RP, I had about 50 degrees of peripheral vision.  7 years later, I had... Continue Reading →

Navigating Urban Life

In the years since I stopped working, I have made a point of avoiding the navigation of urban life as much as possible.  I hide away.  Frustration and fear are my constant companions.  My vibrance has been sand papered away and I... Continue Reading →

Leisure

RP has thrown me into a life of leisure.  It sounds decadent,  but has felt confusing and burdensome.  It has been a struggle for me to brush off the restraints of socialization and embrace the time that RP has afforded me.... Continue Reading →

Buzz Kill

The first time I got really drunk, I was 13.  I stole 2 bottles of wine from my mom's plentiful collection and ran off in the dark to hang out at the junior high school with my friend Jean.  I... Continue Reading →

January

I hate January.  It is a month of sad anniversaries and debilitating despair.  I am useless in January.  I gain weight and get drunk and climb under the biggest rock I can find. This January was no exception; but now... Continue Reading →

Poetry and Blindness

  I realize that I am a rubbish blogger, tweeter, instagrammer and facebooker.  I go along feeling as if I have just written a blog post and when I visit my site, I find it has been months since I... Continue Reading →

I Should Be Over the Moon

I recently saw my retinal specialist, who told me that my vision  remains stable.  I have had stable vision now for about 7 years, and I know that in the world of RP I am extremely lucky.  And, that piece... Continue Reading →

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