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Stories From the Edge of Blindness

In 2002, Retinitis Pigmentosa changed my life. This is my story of a slow approach to darkness.

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retinal disease

Mobility Training – Day 1- Down on my Knees

After 6 months on the waiting list, I have finally begun mobility training at the Braille Institute. Although the waiting period gave me time to absorb some of the gravity of my decision to do O&M,  my emotions are running... Continue Reading →

I May or May Not See You in Two Years

Every two years, I go into the Jules Stein Eye Institute to see my retinal specialist.  There is nothing he can do for me except tell me if my remaining retinal cells are intact or if they too are fading... Continue Reading →

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