Stories From the Edge of Blindness

In 2002, Retinitis Pigmentosa changed my life. This is my story of a slow approach to darkness.


retinal disease

Mobility Training – Day 1- Down on my Knees

After 6 months on the waiting list, I have finally begun mobility training at the Braille Institute. Although the waiting period gave me time to absorb some of the gravity of my decision to do O&M, ┬ámy emotions are running... Continue Reading →

I May or May Not See You in Two Years

Every two years, I go into the Jules Stein Eye Institute to see my retinal specialist. ┬áThere is nothing he can do for me except tell me if my remaining retinal cells are intact or if they too are fading... Continue Reading →

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