Search

Stories From the Edge of Blindness

In 2002, Retinitis Pigmentosa changed my life. This is my story of a slow approach to darkness.

Tag

retinal disease

A Week Off

I took a break from O&M this week; my determination has fallen somewhere beneath my feet and I needed to find it.  I am still struggling with feelings of being a fraud, but whenever those thoughts creep up, I can... Continue Reading →

#6 Flag Your Cane

I am at the halfway point in my O&M training; 6 weeks with Zelda and I still have such a long way to go. Tamar and I started our lesson today back in the cafeteria, with the model and the... Continue Reading →

Ode to RP

Wildflower Muse  published my poem, Ode to RP, last year.  WM is a beautiful online magazine and I am proud to have had my work published there. I am reposting this because I feel like it is still and will... Continue Reading →

Eyes on Fire

At the end of my last post, I left you in the hallway after leaving ERG hell, and my eyes were useless...... The light in the hallway was incredibly bright, an assault on my dilated pupils, but all I saw... Continue Reading →

ERG – Take 2

The day of my RP diagnosis was filled with different tests, including an ERG (Electro Retina Gram), which tests the retinas response to light.  It was by far the most grueling of the tests that day ( I wrote about... Continue Reading →

#4 Mourning

O&M lesson #4, still within the comfort of the Braille Institute;  I am not quite ready to start working outside with Tamar and Zelda, and anyway it is bloody hot here in Los Angeles, so the more time in the... Continue Reading →

A Cane in the Hand

On the bus ride across town from my Dad's house to my apartment, I took Zelda out on the bus and kept her in my lap as I listened to a history podcast.  As people got on the bus, I... Continue Reading →

Lesson #3 Entirely with Zelda

I think I was on a bit of a cloud during my first two sessions with Tamar.  I was so proud of myself to have taken such a big step, impressed with her, safe with Joe there at the second... Continue Reading →

Mobility Training – Day 2 – Good Guide/Bad Guide

Today was my second lesson with Tamar and my husband Joe came with me to get some lessons of his own on how to be a good and helpful Guide Person.  I don't know if Guide Person is the right... Continue Reading →

Blog at WordPress.com.

Up ↑