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Stories From the Edge of Blindness

In 2002, Retinitis Pigmentosa changed my life. This is my story of a slow approach to darkness.

Tag

partially sighted

Hands off the Wheel

A good friend of mine made a great recommendation regarding my blog; she pointed out that people new to my blog may not know that when I refer to Zelda(or Z), I am taking about my white cane. So, in... Continue Reading →

Under the Lacquer – Part 3

This third, and last, story about the women at the nail salon isn't one I really know; it is woven from a few threads of detail given to me by her friends, but mostly from my imagination. She is the... Continue Reading →

Part Time Cane

When I first started O&M, I resigned myself to having Zelda with me at all times and using her everywhere I went.  I grew to feel that if I didn't do this, I was a bad student and an irresponsible... Continue Reading →

A Week Off

I took a break from O&M this week; my determination has fallen somewhere beneath my feet and I needed to find it.  I am still struggling with feelings of being a fraud, but whenever those thoughts creep up, I can... Continue Reading →

Eyes on Fire

At the end of my last post, I left you in the hallway after leaving ERG hell, and my eyes were useless...... The light in the hallway was incredibly bright, an assault on my dilated pupils, but all I saw... Continue Reading →

ERG – Take 2

The day of my RP diagnosis was filled with different tests, including an ERG (Electro Retina Gram), which tests the retinas response to light.  It was by far the most grueling of the tests that day ( I wrote about... Continue Reading →

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