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Stories From the Edge of Blindness

In 2002, Retinitis Pigmentosa changed my life. This is my story of a slow approach to darkness.

Tag

mobility training

Part Time Cane

When I first started O&M, I resigned myself to having Zelda with me at all times and using her everywhere I went.  I grew to feel that if I didn't do this, I was a bad student and an irresponsible... Continue Reading →

Taking Zelda for a Spin

I have been hesitant to illicit the help of Zelda outside the Braille Institute, but Tamar pointed out to me the importance of utilizing the cane at least at street crossings, to let people know that I may not see... Continue Reading →

Mobility Training – Day 2 – Good Guide/Bad Guide

Today was my second lesson with Tamar and my husband Joe came with me to get some lessons of his own on how to be a good and helpful Guide Person.  I don't know if Guide Person is the right... Continue Reading →

Mobility Training – Day 1- Down on my Knees

After 6 months on the waiting list, I have finally begun mobility training at the Braille Institute. Although the waiting period gave me time to absorb some of the gravity of my decision to do O&M,  my emotions are running... Continue Reading →

Life in Degrees

With my recent decline in vision and subsequent approval for mobility training, I have been retracing my RP life in degrees.  When I was diagnosed with RP, I had about 50 degrees of peripheral vision.  7 years later, I had... Continue Reading →

Navigating Urban Life

In the years since I stopped working, I have made a point of avoiding the navigation of urban life as much as possible.  I hide away.  Frustration and fear are my constant companions.  My vibrance has been sand papered away and I... Continue Reading →

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