Stories From the Edge of Blindness

In 2002, Retinitis Pigmentosa changed my life. This is my story of a slow approach to darkness.


losing your sight

Light Phenomenon

The lights play tricks on me.  They disappear when my eyes are open and appear in kaleidoscope fashion when I shut them against my blindness. It always feels so strange to see more with my eyes closed that with them... Continue Reading →

East of Rock and Roll Ralph’s

I was out for a walk to the shoe store, trying to have some restorative me time, but it is always a coin toss in my neighborhood.  I left my apartment, excited about a potential new pair of shoes and... Continue Reading →

The Sad Turkey

So, I started this post at Thanksgiving, but didn't want to wait until next Thanksgiving to post it; so perhaps untimely, but here it is: When I was six and in first grade, everyone in my class was asked to... Continue Reading →


I hate January.  It is a month of sad anniversaries and debilitating despair.  I am useless in January.  I gain weight and get drunk and climb under the biggest rock I can find. This January was no exception; but now... Continue Reading →

Tunnel Vision

I hate the term "tunnel vision".  It has always scared the crap out of me, and until recently, I really had no idea what tunnel vision felt like, even though I supposedly have it. As I walk around Hollywood, I... Continue Reading →

Dining Out

Joe and I often eat out when he has a day off.  We tend to go to the same places where we know the food is good and I am familiar with the lighting and layout of the restaurant. Dining... Continue Reading →

Road Burns

I shared a Facebook post this morning from a fellow RPer which joked about inanimate objects exhibiting hostile behavior toward humans.  I often post these kinds of things, in the spirit of camaraderie and to give some understanding, through humor,... Continue Reading →

Poetry and Blindness

  I realize that I am a rubbish blogger, tweeter, instagrammer and facebooker.  I go along feeling as if I have just written a blog post and when I visit my site, I find it has been months since I... Continue Reading →

Re- Emergence

It feels like hundreds of years since I have visited my own blog.  My bones should have become brittle and my hair stark white.  I will forever be in the waiting game, but this time, I return to this blog... Continue Reading →

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