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Stories From the Edge of Blindness

In 2002, Retinitis Pigmentosa changed my life. This is my story of a slow approach to darkness.

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Family

I Am Not Blind When I Close My Eyes

I have been writing about a storm, hiding behind the clamor of the rain. I have been watching my feelings twist into the drain, willing away their texture and weight. It is futile; this hiding, this twisting, this willing away.... Continue Reading →

I Don’t Do Sick Well

I am sick.  Nothing serious, just a cold that won't seem to go away, but I don't do sick well.  No one likes being sick, I get that, but when I get a cold, I act like the world is... Continue Reading →

Seasonal Voice

I wasn't going  to write about Christmas, but here I am at 6am on Christmas Eve morning, reading lots of posts about Christmas, and I felt like adding my seasonal voice to the mix.   Let me start by saying,... Continue Reading →

Embers

The thing with fire is that it is unpredictable.  An ember can become a rage of flames that devour hillsides and homes, a torrent of fear that reaches its fingers into the sky and covers the landscape in ash.  Fire... Continue Reading →

Sheila-Na- Gig Winter Poetry Contest

I am thrilled to have been selected as the winner of the Sheila-Na-Gig Winter Poetry Contest. The issue is now live! Thank you to Hayley and Jessica for this huge honor!

Writing Sample Part 4 – Surrender

It’s impossible to think about going blind without thinking about loss.  When you have a degenerative disease like RP, the loss comes in unpredictable bursts that steal pleasures and pluck freedom from disappearing fingers.  In the weeks just after my... Continue Reading →

Rejections Aren’t Created Equal

Even though I talk about only needing validation from myself and how the writing is enough - and I do believe these things - I still have those aching moments where I search for validation from the outside, and feel... Continue Reading →

4 Years

Today is the 4th anniversary of my brother's death.  He has been on my mind more than usual this week and I woke up this morning feeling like it must be impossible that he has been gone so long. I... Continue Reading →

Poem in Foxglove Journal

I am thrilled to have my poem, "Rose Tinted Glasses" in Foxglove Journal.  My thanks to Elizabeth Gibson who has created a beautiful journal.  I am honored to be among the writers she has chosen to publish.  

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