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Stories From the Edge of Blindness

In 2002, Retinitis Pigmentosa changed my life. This is my story of a slow approach to darkness.

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family support

Vision Walk

This October, I will be participating in my fourth Vision Walk to help raise money for the Foundation Fighting Blindness.  The FFB hosts Vision Walks all over the United States to raise money for research to help find treatments for... Continue Reading →

Between the Barbs

While reading over some of my more recent posts, I kind of wanted to tell myself to stop bitching.  I suppose that I have been in a bit of a barbed mood lately, but there are wonderful things that happen... Continue Reading →

Silent Disease

I have begun to think of RP as not only an invisible disease but a silent one as well.  I don't generally  have the tendency to feel sorry for myself or to draw a lot of attention to the fact... Continue Reading →

A Little More Each Day

I have been having a hard time finding the motivation to write lately.  My heart is breaking. My brother was diagnosed with a very serious illness in May of this year, had surgery in July and has been suffering from one complication after another ever since.  I go... Continue Reading →

Useless

One of the most overwhelming feelings for me in connection to RP is uselessness, and a lot of it stems from the fact that I can't drive.  As I have written and written, Los Angeles is a city of cars;... Continue Reading →

Hero

We all have heroes; people we look up to for their courage, kindness and strength.  One of my heroes was just three years old when I was born.  He is my brother John. John has always been one of the... Continue Reading →

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