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Stories From the Edge of Blindness

In 2002, Retinitis Pigmentosa changed my life. This is my story of a slow approach to darkness.

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disability

Rejection Skin

I went through a period in my late twenties when I was writing almost prolifically and sending my work out a lot and getting published a little; it was when I acquired the skin necessary to deal with rejection.  I... Continue Reading →

Lesson #3 Entirely with Zelda

I think I was on a bit of a cloud during my first two sessions with Tamar.  I was so proud of myself to have taken such a big step, impressed with her, safe with Joe there at the second... Continue Reading →

Empty Case

Every Thursday night, I take my pugs, Blossom and Jade, to a playgroup at a local pet shop.  The group is referred to as  Yappy Hour and my girls love it.  I don't do the dog park thing, so this is... Continue Reading →

Country Road

  Hollywood doesn't set you free; she crawls under your skin and into your head.  She feeds you her pulse and pulls you into her sun starched rhythm.  In Hollywood, there is no such thing as typical, no blueprint or... Continue Reading →

Life in Degrees

With my recent decline in vision and subsequent approval for mobility training, I have been retracing my RP life in degrees.  When I was diagnosed with RP, I had about 50 degrees of peripheral vision.  7 years later, I had... Continue Reading →

Navigating Urban Life

In the years since I stopped working, I have made a point of avoiding the navigation of urban life as much as possible.  I hide away.  Frustration and fear are my constant companions.  My vibrance has been sand papered away and I... Continue Reading →

Leisure

RP has thrown me into a life of leisure.  It sounds decadent,  but has felt confusing and burdensome.  It has been a struggle for me to brush off the restraints of socialization and embrace the time that RP has afforded me.... Continue Reading →

Pillars and White Canes

I am a walking disaster. The bruises on my arm and hand and legs, and the bump on my head, remind me that I can't just walk through the world as if I am graceful, as if I can see.... Continue Reading →

Spill

The doctors tell me my vision is stable, but I feel blinder to the world around me.  I am tripping more, spilling out onto sidewalks and park lawns.  I am searching the house more often for my husband and my... Continue Reading →

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