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Stories From the Edge of Blindness

In 2002, Retinitis Pigmentosa changed my life. This is my story of a slow approach to darkness.

Tag

degenerative diseases

Isn’t that Something Only Old People Get?

RP is anything but straightforward; it comes with lots of extras that you wouldn't expect. A year after my diagnosis, I thought I had become pretty versed in the language of RP and what I might possibly be faced with... Continue Reading →

It’s Right in Front of You

I was 33 when Dr. Heckenlively told me I was going blind. ¬† After dropping the bomb, he took a vial of my blood to, as he so eloquently put it, "rule out syphilis", ¬†gave me a list of vitamins... Continue Reading →

What do you See?

Most of the time, I find that people seem reticent to ask about my vision; I don't know if it makes them uncomfortable or if the concept of someone being partially sighted is just too hard to grasp, but the... Continue Reading →

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