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Stories From the Edge of Blindness

In 2002, Retinitis Pigmentosa changed my life. This is my story of a slow approach to darkness.

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creativity

The Year Through RP Eyes

I debated writing an end of year post.  I have been in what feels like an endless sinking, felt myself fading so rapidly as the days drag forward, bringing me closer to 50 and what I imagined would be an... Continue Reading →

Badass Ballerina

My friend Sarah, who you may know from "On the way to the Barre", is not only an extraordinary person and beautiful ballerina, but she is also an immensely talented writer.  Her essay, "Spider Woman" appears in the current issue... Continue Reading →

Sidlak Poetry – Take II

A while ago, I put out a post about Sidlak Poetry.  I learned of it from a blog I read and was incredibly excited to give it a try.  In usual form, I didn't follow the rules, or understand them.... Continue Reading →

Stretching my Voice

I write because it is how my brain translates life.  I write fiction because I want to stretch my voice and try new things.  I write non fiction because I want to tell my story in ways that will hopefully... Continue Reading →

Community and Liebster

I have always liked my alone time.  I have only a few friends, but they are close friends.  I don't like big crowds or loud places, and I would rather be at home than anywhere else.  I have taken numerous... Continue Reading →

Leisure

RP has thrown me into a life of leisure.  It sounds decadent,  but has felt confusing and burdensome.  It has been a struggle for me to brush off the restraints of socialization and embrace the time that RP has afforded me.... Continue Reading →

Spill

The doctors tell me my vision is stable, but I feel blinder to the world around me.  I am tripping more, spilling out onto sidewalks and park lawns.  I am searching the house more often for my husband and my... Continue Reading →

The Sad Turkey

So, I started this post at Thanksgiving, but didn't want to wait until next Thanksgiving to post it; so perhaps untimely, but here it is: When I was six and in first grade, everyone in my class was asked to... Continue Reading →

Poetry and Blindness

  I realize that I am a rubbish blogger, tweeter, instagrammer and facebooker.  I go along feeling as if I have just written a blog post and when I visit my site, I find it has been months since I... Continue Reading →

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