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Stories From the Edge of Blindness

In 2002, Retinitis Pigmentosa changed my life. This is my story of a slow approach to darkness.

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Brothers and Sisters

4 Years

Today is the 4th anniversary of my brother's death.  He has been on my mind more than usual this week and I woke up this morning feeling like it must be impossible that he has been gone so long. I... Continue Reading →

January

I hate January.  It is a month of sad anniversaries and debilitating despair.  I am useless in January.  I gain weight and get drunk and climb under the biggest rock I can find. This January was no exception; but now... Continue Reading →

Loss

I have been away from my creative self for so very long; consumed by grief and struggling under the weight of loss.  For almost three years I have been defined by illness and death.  I assumed the roles of watcher... Continue Reading →

Silent Disease

I have begun to think of RP as not only an invisible disease but a silent one as well.  I don't generally  have the tendency to feel sorry for myself or to draw a lot of attention to the fact... Continue Reading →

A Little More Each Day

I have been having a hard time finding the motivation to write lately.  My heart is breaking. My brother was diagnosed with a very serious illness in May of this year, had surgery in July and has been suffering from one complication after another ever since.  I go... Continue Reading →

Useless

One of the most overwhelming feelings for me in connection to RP is uselessness, and a lot of it stems from the fact that I can't drive.  As I have written and written, Los Angeles is a city of cars;... Continue Reading →

Hero

We all have heroes; people we look up to for their courage, kindness and strength.  One of my heroes was just three years old when I was born.  He is my brother John. John has always been one of the... Continue Reading →

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