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Stories From the Edge of Blindness

In 2002, Retinitis Pigmentosa changed my life. This is my story of a slow approach to darkness.

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blind women

Hope

Ever since my RP diagnosis, I have shied away from hope. Not a coquettish kind of shy, but a hand in the face, get the hell away from me kind of shy. I didn't see the point of getting into... Continue Reading →

Genetics and RP

I am, by no means, an expert when it comes to the science of RP, but I want to try to explain the bits that I do understand.  Anyone who has RP and reads my blog, please don't hesitate to... Continue Reading →

Tiny and Immense

When I was first diagnosed with RP and thinking constantly about what it would be like to be blind, I was gripped by the spikes of claustrophobia.  I imagined that the world would become tiny, the darkness choking me and... Continue Reading →

The Human Condition

I feel buried beneath the weight of a fog that permeates my thoughts. I am on a dangerous precipice between blindness and sight, my strides uncertain and guided by terror. I find myself again and again, tangled up in a... Continue Reading →

Am I too Negative?

Something has been on my mind lately and  I have been hesitant to write about it in this particular forum; I worry that it may upset some people, but I feel compelled, so I will write it and face the... Continue Reading →

Reluctant Side Kick

*To new readers: When I refer to Zelda (or Z), I am writing about my white cane.  Thank you for reading "Stories from the Edge of Blindness" Reluctant Side Kick Zelda and I have reconciled, again.  I suppose we are... Continue Reading →

Being a Writer

  While reading a friend's blog this morning (The Incurable Dreamer), I found myself thinking about what it means to be a writer.  She is a brilliant writer and has chosen to dedicate herself to it, which makes me happy... Continue Reading →

Under the Lacquer – Part 2

I haven't had the luxury of traveling or living in other countries, but what I learn from the people I meet in my regular, run of the mill life, enriches who I am and gives me images of a world... Continue Reading →

Under the Lacquer – Part 1

Because I have been stripped of my wheels in an automobilecentric city, and because I am losing my vision at an unpredictable rate, I am happily forced to pay more attention to the world directly around me.  I have always... Continue Reading →

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