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Stories From the Edge of Blindness

In 2002, Retinitis Pigmentosa changed my life. This is my story of a slow approach to darkness.

Category

relationships

Your Promises are Collapsible

First and most importantly, I hope all who are reading this are safe and well and home. I am, as ever so incredibly grateful for the support and presence of this community in my life! Continuing with my recorded poetry... Continue Reading →

Unwavering

I never wrote love poems, not about the good parts of love anyway, until I met my husband, Joe.  Perhaps I had never really been in love before him, or perhaps I didn't know what real love was supposed to... Continue Reading →

By Your Side

I have been in a bleak place lately.  It is a familiar place, a place of introspection where I can try to figure out what is bringing on the sadness.  I thought it was because of the shit storm of... Continue Reading →

The Irishman

I don't often write love poems.  I have written only a handful and they are all about one person. He is a man who has Ireland running through his blood and a heart that beats with a strength and rhythm... Continue Reading →

Love Poem

I don't often write love poems, so I am especially thrilled to have this one in Foxglove Journal.  A huge thank you to editor Elizabeth Gibson!  The poem is called, "Honest Hands"

Chantarelle’s Notebook

I am super excited to have 3 of my poems in Chantarelle's Notebook.  A  huge thank you to editors Kendall and Christina!  You can read the poems here.

Vigor in my Stride

I have often lived on the darker side of things, turned toward sadness and despair, wrapped myself in a cloak of sorrow.  I know that this way of living and thinking is simply part of the way I am made,... Continue Reading →

Seasonal Voice

I wasn't going  to write about Christmas, but here I am at 6am on Christmas Eve morning, reading lots of posts about Christmas, and I felt like adding my seasonal voice to the mix.   Let me start by saying,... Continue Reading →

Tiny and Immense

When I was first diagnosed with RP and thinking constantly about what it would be like to be blind, I was gripped by the spikes of claustrophobia.  I imagined that the world would become tiny, the darkness choking me and... Continue Reading →

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