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Stories From the Edge of Blindness

In 2002, Retinitis Pigmentosa changed my life. This is my story of a slow approach to darkness.

Category

Memoir

That Kind of Day

I had leftover sweet potato fries for lunch.  Yeah, it’s that kind of day.  I can’t focus.  The city is bumpy and screeching outside my windows and I can smell summer approaching. I know that spring has only recently officially begun, but there is no Spring here, not really.  I fell on the sidewalk, while walking the dogs and gawking at the monstrous buildings that are popping up like weeds in Hollywood. I got a bit scraped up and bruised. Why does falling hurt more when you’re almost 49? And almost blind? I cry when I fall, not because it hurts, but because it reminds me.  I am resenting Zelda (my white cane, for those who haven’t been introduced) and RP and middle age. I should be working on poetry.  I am writing this blog post instead. Continue reading “That Kind of Day”

A Guest in Someone Else’s Home

When I discovered Steve’s blog, MSich Chronicles, I was an instant fan, of Steve and of his writing.  So, you can imagine how thrilled I was when Steve asked if I would write a guest post for his blog.  This is my first foray into guest posting and it is a real honor to be asked to be a guest writer in another’s virtual writing home. Thank you Steve for putting your trust in me.

Fraud

I am a lazy blogger.  It probably isn’t a secret.  Most of my posts are unpolished and clearly just an unwinding of something within me.  Lately, they aren’t even new, just links to things I have already written that are appearing elsewhere.  In truth, I haven’t been writing a lot the past few weeks; I write every day, but some days the words are few and feel miles from anything remotely palatable.

Most often, here and outside of the blog, I write without direction.  I don’t do research or develop plot lines.  I put in the time and the work, but I let the words themselves guide me. I revisit them and change them, smash them and polish them, especially with my poetry, but I don’t approach them with forethought.  I suppose the unwinding is simply my writing process, but this saturates me with self-doubt; I always return to the idea that I must be doing it wrong, that I don’t have the tools to do it right.  I am terrified that I will finally discover what I have feared all along, that I am a fraud.
Continue reading “Fraud”

Bones Plucked Out

I am thrilled to have my poem, “Bones Plucked Out“, in Eunoia Review today!!!!

Literary Juice

I am so excited and honored to have been asked to be a part of the Literary Juice Q&A Series.  I owe huge thanks to editor Sara Rajan, for her beautiful questions and for her support of my writing.  You can read the interview here.

A Hundred Secret Senses

Toward the end of last year, I started writing a bit more about the ways in which RP affects my physical life and tried to answer some questions.  One question that I haven’t answered, posed by two of my fellow bloggers and friends, Mandi and Tom, is about how my other senses are affected as my sense of sight is swallowed up by RP.

There are differing opinions about this.  Some people say that the idea of your other senses getting stronger is a myth, others think it is pure fantasy – who doesn’t want to be DareDevil after all? I think it is an inevitability, but also something that can be cultivated over time.
Continue reading “A Hundred Secret Senses”

Poem in Foxglove Journal

I am thrilled to have another of my poems in Foxglove Journal. My gratitude goes out to editor, Elizabeth Gibson.  This one is very different from my usual stuff.  You can check it out here.

3rd Poem in Anapest Journal

I am honored to have a 3rd poem out today in Anapest Journal. A big thank you to editor Veronica Bruce! The poem is, “Guru“.

2 of 3 Poems

I am super happy that Anapest Journal has accepted 3 of my poems.  The first was published yesterday and the second is out today.  It is called Sleep and Squalor.

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