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Stories From the Edge of Blindness

In 2002, Retinitis Pigmentosa changed my life. This is my story of a slow approach to darkness.

Category

Family

Do a Little Dance

My Mom was a colourful and effervescent person. She shined more brightly than anyone I have ever known and expressed unapologetic interest in things that propelled her down less travelled paths. She was in a coven, painted banners for the... Continue Reading →

Stress Fracture

I am thrilled see my poem," Stress Fracture", published today in Literati Magazine. My huge thanks to publisher Renée Sigel!!!

“Things My Mother Left Behind” Available for Pre-Order

I am sitting in my very quiet writing space, typing this in a state of simultaneous disbelief and total joy. I am thrilled beyond the sky to announce that my book, "Things My Mother Left Behind", is available for pre-order,... Continue Reading →

Blind in the Time of the Virus

It seems like ages since I have written about blindness.  It feels so small, so insignificant compared to what the world is facing, but regardless of its weight in a moment or hour or day, blindness is always with me.  Blindness won’t... Continue Reading →

Untethered

I was in the car with my husband yesterday, Thomson Twins jangling in the background, when I started to think of what it means to be untethered.  I am parentless, floating without the anchors that rooted my bones to the earth,... Continue Reading →

I Am Not Blind When I Close My Eyes

I have been writing about a storm, hiding behind the clamor of the rain. I have been watching my feelings twist into the drain, willing away their texture and weight. It is futile; this hiding, this twisting, this willing away.... Continue Reading →

Stubborn Child

Stubborn Child is what would have been the third in my next series of poems, from a journal called Wildflower Muse. I am putting it out now, because  I have decided to enter a contest with some of my recorded... Continue Reading →

I Become the Noise

In a split second, the weight of my mind can become unbearable.  The feeling of my skin disgusts me.  I remember everything that makes me ugly, all the anger and how I have hurt people.  I start thinking about everything... Continue Reading →

Thirty One Years

Thirty one years ago today, after a long battle with a gene mutation that gave her multiple kinds of cancer, my Mom died. She was 52 years old.  This photograph was taken on her 50th birthday.  This year, I will... Continue Reading →

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