It's been a rough week. Lots of tears. Lots of sun falling out of my mouth, leaving shadows to choke me and change the taste of the landscape. When I feel this way, all I want is to disappear, to... Continue Reading →
When I started writing my blog, it was going to be a story solely about blindness, but as the years have progressed, I have discovered that the story of my blindness is the part that weaves itself into the whole,... Continue Reading →
It seems like ages since I have written about blindness. It feels so small, so insignificant compared to what the world is facing, but regardless of its weight in a moment or hour or day, blindness is always with me. Blindness won’t... Continue Reading →
My recorded poetry series continues with the fifth of six poems originally published in Chantarelle's Notebook. If you have a minute and are so inclined, check out my YouTube page and subscribe!!!! https://www.youtube.com/watch?v=1qwIkLrph9M
I was in the car with my husband yesterday, Thomson Twins jangling in the background, when I started to think of what it means to be untethered. I am parentless, floating without the anchors that rooted my bones to the earth,... Continue Reading →
Everything is so quiet and so very loud. Each step I take is labored, heavy and uncertain. I haven't written much at all this year, or submitted or had much published, but today I opened my email to a lovely... Continue Reading →
The title of this post may be a tad misleading. The best eye appointment would either be Dr. Sarraf telling me it has all been a dream and I don't actually have RP, or Dr. Sarraf giving me a pill... Continue Reading →
Tomorrow is my annual appointment with the retinal specialist. I used to suffer from at least a week of anxiety and fear leading up to the appointment, but I have been through it so many times, I now start getting... Continue Reading →