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Stories From the Edge of Blindness

In 2002, Retinitis Pigmentosa changed my life. This is my story of a slow approach to darkness.

Category

Braille

#11 On our Own

Two days ago, I was visiting my Dad, and my StepMom got really sick.  So sick, we had to take her to the emergency room. She is totally fine now, but in the chaos of getting her to the ER,... Continue Reading →

#6 Flag Your Cane

I am at the halfway point in my O&M training; 6 weeks with Zelda and I still have such a long way to go. Tamar and I started our lesson today back in the cafeteria, with the model and the... Continue Reading →

Step off the Curb

The incident that precipitated my contacting the Braille Institute took place in a grocery store.  In case you didn't read about it in an earlier post, it basically involved me and an enormous pillar; one second I was heading for... Continue Reading →

#5 Playing With Toy Cars

My 5th lesson with Tamar wasn't a long one and it didn't involve using Zelda, but I did get to play with toy cars. I got there a little bit late.  It was an early lesson and I knew I... Continue Reading →

#4 Mourning

O&M lesson #4, still within the comfort of the Braille Institute;  I am not quite ready to start working outside with Tamar and Zelda, and anyway it is bloody hot here in Los Angeles, so the more time in the... Continue Reading →

Cracks in the Pavement

During the past two days, I have been to the grocery store twice.  Both visits had me feeling anxious and unsure of my surroundings and footing.  I had Zelda in my bag, but I didn't take her out; feel free... Continue Reading →

Lesson #3 Entirely with Zelda

I think I was on a bit of a cloud during my first two sessions with Tamar.  I was so proud of myself to have taken such a big step, impressed with her, safe with Joe there at the second... Continue Reading →

Mobility Training – Day 2 – Good Guide/Bad Guide

Today was my second lesson with Tamar and my husband Joe came with me to get some lessons of his own on how to be a good and helpful Guide Person.  I don't know if Guide Person is the right... Continue Reading →

Mobility Training – Day 1- Down on my Knees

After 6 months on the waiting list, I have finally begun mobility training at the Braille Institute. Although the waiting period gave me time to absorb some of the gravity of my decision to do O&M,  my emotions are running... Continue Reading →

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