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Stories From the Edge of Blindness

In 2002, Retinitis Pigmentosa changed my life. This is my story of a slow approach to darkness.

Month

March 2019

Recorded Poetry Series – Early

I have resumed my recorded poetry series with another poem originally published in Wildflower Muse, in 2016.  It's called, "Early"  If you like, you can read it here. You can also subscribe to my YouTube channel, if you would like... Continue Reading →

The Furious Gazelle

The Furious Gazelle is having a spring contest, free to enter and you could get some money!  They publish some really great, edgy stuff and I encourage everyone to take a shot and enter the contest!  You have until June... Continue Reading →

Guest Writer – Carrie Ann Golden

The shared experience of RP is what initially drew me to read Carrie Ann's blog, " A Writer and Her Sentimental Muse", but it was something much deeper than blindness that connected us.  Poetry!  Although we both have vision loss,... Continue Reading →

Boozy Bitch

This isn't a pretty story.  Most of my stories aren't, but this one is tough.  Not tough like woe is me and I need to feel loved and get reassurance tough, just stripped down to the most vulnerable place kind... Continue Reading →

Earth and Alchemy

The ace of this, the weight of it…..inescapable. Beautiful poetry from Angela!

Heart Breathings

I think these walls are killing me

in the half-light of the drapery-filtered morning,
breathing is nearly unbearable;
the fan whirs with its white-noised voice,
failing in its attempt at swallowing the stagnancy,
managing only to distribute it in an oscillating,
luke-warm stream that, every few seconds,
blows directly into my face,
making my breath catch in a baby breath gasp,
the unsure gasp of not knowing from where the next will come

I think these walls are killing me

I sit, immobile, acutely aware of my mass,
of the blood begrudgingly pumping its percussive rhythm in my temples,
of the defective dampness emerging on my forehead,
of the ever-growing patches of petechiae-speckled skin,
evidence of an incurable itch that has risen up from the fate that is history-stitched to the soles of my flattened feet

I think these walls are killing me

I long for a singular, bottomless breath,

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Funny Ladies

Although I am not part of the "industry", I do live in Hollywood and inevitably, I have some friends who are actors, writers (of the film and tv variety), and film makers.  And, some of them are crazy talented.  Susan... Continue Reading →

Rearranging the Furniture

Joe and I have lived in our apartment together for almost 10 years (he lived here 4 years before I moved in) and periodically, we rearrange the furniture.  We love it.  It makes the apartment feel brand new.  It may... Continue Reading →

Beyond Shades of Grey

I never believed that the act of living happened in black and white.  I thought it happened in all the shades of gray, the spaces in between, the cracks and caverns and hidden places.  These past few weeks, I have... Continue Reading →

In A Word

I am not here. Really. I am taking a break, working on (now 2 projects) with March 15 deadlines, but I read something yesterday that I absolutely had to share. Suzanne Craig-Whytock, is, in a word, AMAZING!!!! You may know... Continue Reading →

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