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Stories From the Edge of Blindness

In 2002, Retinitis Pigmentosa changed my life. This is my story of a slow approach to darkness.

Month

April 2018

Ink Sweat & Tears March Pick of the Month!

My poem, “Letches”, is the IS&T March Pick of the Month!!!!!!!

I am beyond excited and dancing on the moon!!!!! Also, I can’t deny, in a bit of a state of disbelief!  This is the biggest thing to happen to me in my writing career and I couldn’t be more grateful for all of the love and support and kindness I received.  I have so much thanks to give!

You can read the poem and some of the comments here.

 

 

Poetry that Breaks you Apart

I recently discovered a poet whose use of language is so powerful, it stops my heart.  Clara Burghelea’s poetry breaks you apart and takes you into the minutiae of pulse and breath.  Her work is extraordinary.
Continue reading “Poetry that Breaks you Apart”

Hiking With Dogs (A Rant)

There is a popular hiking spot near my apartment.  It is a walk up into the Hollywood Hills and then about 2 more miles up a path that has been carved into the mountain.  There are a lot of beautiful hiking spots in L.A.. This isn’t one of them.  But, it is a good work out and it’s free and it  doesn’t require a car to get there (which means I can go on my own), so yesterday I decided to hike instead of getting Pinkberry.  It was a hot day.  Really hot.

Runyon Canyon consists of a paved trail on one side, man-made step like things on the other, about 3 trees and no shade.  There is no respite from the heat when you are up there and the higher you climb the hotter it gets.  So, why the fuck do people bring their dogs?  Obviously, this is something that upsets me.
Continue reading “Hiking With Dogs (A Rant)”

One More Day

I have been immersed in working on some pretty intense poems this week, which is both incredibly gratifying and exhausting.  I finally finished and sent them out and now I can breathe for a bit.  I am going to return to writing some new posts next week, but for today, I Just wanted to thank everyone who has supported me with votes for my shortlisted Ink Sweat and Tears poem.

If you want to, but haven’t  had the chance to, vote for my poem, “Letches” for the March Pick of the Month, you can do so here, until tomorrow April 15. And, please feel free to share the link with friends!

Ink Sweat and Tears is publishing some incredible contemporary poetry and they are worth checking out, even if you don’t vote.  I have personally discovered some incredible poets in the virtual pages of IS&T and will be sharing some of their work throughout the month.

Thank you for all of the love and support.  I am feeling so incredibly grateful!

Angela’s Heart Breathings

During my time in this amazing virtual community, I have had the pleasure of reading some extraordinary poetry, from poets all over the globe.  There is no way I could honor all of them in just a month, but I want to dedicate some of National Poetry Month to the poets whose work I found through the blogging world.

Angela has a story somewhat similar to my own.  She wrote when she was younger, and then life happened and she stepped away from the page, but has now returned.  I am so glad she has.  She tells it better than I do:

“About four years ago, I began the process of unbecoming, of shedding the layers of expectation. Of getting lost so I could be found, of asking the right questions so I could find comfort in the being lost. Of just being me.”

Continue reading “Angela’s Heart Breathings”

My Poem”Letches” Shortlisted for IS&T Pick of the Month

I just got an email that shot me over the moon and under the sea and back into the heart of the stars!  In March, my poem, “Letches” was published in Ink Sweat & Tears; it was a huge honor and now, the poem has been shortlisted for the Ink Sweat and Tears pick of the month.  I am in a state of disbelief and elation!

The pick of the month is decided by votes and I would be incredibly grateful for yours.  You can follow this link and vote for my poem, “Letches”, until April 15.

Thank you for your encouragement and support!!!!

I am doing a shake rattle and roll kind of happy dance right now!!!!!!!

For You My Friend

I am posting this poem for an extraordinary and beautiful new friend.  You know who you are.  My heart and love are with you today.

Sono’s Death Poem

Don’t just stand there with your hair turning gray,
Soon enough the seas will sink your little island
So while there is still the illusion of time,
Set out for another shore.
No sense packing a bag.
You won’t be able to lift it into your boat.
Give away all your collections.
Take only new seeds and an old stick.
Send out some prayers on the wind before you sail.
Don’t be afraid.
Someone knows you’re coming.
An extra fish has been salted.

— Mona Santacroce

 

Sidlak Poetry – Take II

A while ago, I put out a post about Sidlak Poetry.  I learned of it from a blog I read and was incredibly excited to give it a try.  In usual form, I didn’t follow the rules, or understand them.  So, this is my second attempt at Sidlak Poetry. Hopefully, I have a better grasp this time!

Sidlak poetry (sid/lak) is a structured poetry consisting of 5 lines with 3-5-7-9syllables AND A COLOR. The last line must be a COLOR that describes the whole poem or the feelings of the writer.

Continue reading “Sidlak Poetry – Take II”

The Flip Side

Ironically, given that this is National Poetry Month, this post is not about poetry (they can’t all be), and it may not be particularly poetic.  I just finished and submitted one of the most personal poems I have ever written, and although I am thrilled that it is the month of celebrating poetry, and I am reading it voraciously, I need to take a couple of days away from writing it.

I recently had what I now call ( thanks to Katrin),  a “sucks to be blind” day.  I need them every once in a while; I got through it, I always do, and I emerged from it on the flip side of what blindness and RP have brought into my life.

I have read a lot of blog posts, written by visually impaired writers, about the benefits of being blind.  I always scoffed at them.  What could possibly be beneficial about having a disease that is causing you to lose the one thing that pretty much everyone is terrified to lose?  I thought it was total bullshit.  I was wrong.
Continue reading “The Flip Side”

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