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Stories From the Edge of Blindness

In 2002, Retinitis Pigmentosa changed my life. This is my story of a slow approach to darkness.

Month

December 2017

Vigor in my Stride

I have often lived on the darker side of things, turned toward sadness and despair, wrapped myself in a cloak of sorrow.  I know that this way of living and thinking is simply part of the way I am made,... Continue Reading →

It’s Right in Front of You

I was 33 when Dr. Heckenlively told me I was going blind.   After dropping the bomb, he took a vial of my blood to, as he so eloquently put it, "rule out syphilis",  gave me a list of vitamins... Continue Reading →

Seasonal Voice

I wasn't going  to write about Christmas, but here I am at 6am on Christmas Eve morning, reading lots of posts about Christmas, and I felt like adding my seasonal voice to the mix.   Let me start by saying,... Continue Reading →

The Light Conundrum

One of the first signs of RP is night blindness. The retinas are responsible for registering and responding to light, so when you have RP and your retinal cells are dying, they can't tell your pupils to contract or expand... Continue Reading →

Tiny and Immense

When I was first diagnosed with RP and thinking constantly about what it would be like to be blind, I was gripped by the spikes of claustrophobia.  I imagined that the world would become tiny, the darkness choking me and... Continue Reading →

Poem in Literary Juice

I am super excited to have one of my poems in the December issue of Literary Juice.  Thank you editor, Sara Rajan, for including me in your amazing magazine.

What do you See?

Most of the time, I find that people seem reticent to ask about my vision; I don't know if it makes them uncomfortable or if the concept of someone being partially sighted is just too hard to grasp, but the... Continue Reading →

Embers

The thing with fire is that it is unpredictable.  An ember can become a rage of flames that devour hillsides and homes, a torrent of fear that reaches its fingers into the sky and covers the landscape in ash.  Fire... Continue Reading →

Fires

I live in Los Angeles and in case you didn't know, we are basically on fire.  My parents live in one of the areas that was evacuated and they are staying with us, in our apartment with our 2 cats... Continue Reading →

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