Stories From the Edge of Blindness

In 2002, Retinitis Pigmentosa changed my life. This is my story of a slow approach to darkness.


July 2017

A Clear Handle

Today I feel like I am failing; with O&M training and Zelda.  I keep waiting to feel natural with Z, but instead I feel awkward and so far away from the reality of what she means to me and to... Continue Reading →

#6 Flag Your Cane

I am at the halfway point in my O&M training; 6 weeks with Zelda and I still have such a long way to go. Tamar and I started our lesson today back in the cafeteria, with the model and the... Continue Reading →

My First Helpful Person

I was at UCLA the other day, routine stuff, nothing to do with RP, and I was cruising around with Zelda.  I find it most advantageous to keep my hat and sunglasses on when Z and I are on the... Continue Reading →

Step off the Curb

The incident that precipitated my contacting the Braille Institute took place in a grocery store.  In case you didn't read about it in an earlier post, it basically involved me and an enormous pillar; one second I was heading for... Continue Reading →

#5 Playing With Toy Cars

My 5th lesson with Tamar wasn't a long one and it didn't involve using Zelda, but I did get to play with toy cars. I got there a little bit late.  It was an early lesson and I knew I... Continue Reading →

Ode to RP

Wildflower Muse  published my poem, Ode to RP, last year.  WM is a beautiful online magazine and I am proud to have had my work published there. I am reposting this because I feel like it is still and will... Continue Reading →


My poem, Crimson, was accepted for publication in Sheila - Na - Gig Online and is now live.  

Eyes on Fire

At the end of my last post, I left you in the hallway after leaving ERG hell, and my eyes were useless...... The light in the hallway was incredibly bright, an assault on my dilated pupils, but all I saw... Continue Reading →

ERG – Take 2

The day of my RP diagnosis was filled with different tests, including an ERG (Electro Retina Gram), which tests the retinas response to light.  It was by far the most grueling of the tests that day ( I wrote about... Continue Reading →

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