My sister is about to return from an epic adventure in India with her family. She shared beautiful pictures on facebook and posted about the various places they traveled. I feel so happy for her; this is something she has always wanted to do and her joy is infectious. I also feel sad. I think about all the amazing things the world has to offer and how I may never see them while I have enough vision to take them in.
My husband is from Ireland and he speaks of its beauty often; I see the joy in his eyes when he shares stories of his life before America swallowed him up. I have wanted to travel to Ireland for as long as I can remember and now, the thought of being able to see it with the person I love most in the world makes me want to go all the more. A broken leg and dogs and money and time have all gotten in the way of our going to see his home and I worry that when we are finally able to go, I won’t be able to see the green and the lush and the beauty of the country of my dreams.
I try to live in the moments that are closest to me, but it is difficult to do when you have an unpredictable disease. I don’t wallow in thoughts of what I may loose as my vision dies, but I do have days where I feel temporarily consumed by grief and fear. If I was a good person, I would probably be more positive and always look on the proverbial bright side, but the bright side literally hurts my eyes.
February 19, 2017 at 10:04 pm
As soon as that leg heals, get a dog sitter. You’ll be grateful in the long run!
April 26, 2017 at 7:05 pm
what do you mean, “if I was a good person”? you are a great person. now, cut that out and go to Ireland! you deserve to enjoy yourself. especially on a trip w/ your honey! xo
April 26, 2017 at 7:40 pm
Love you Sweet P❤️
June 16, 2017 at 7:59 am
My son has RP from birth. He has now completed his Phd in English Literature and is working as Assistant Professor. He said you may like the books by John Hull. Touching the rock : An experience of Blindness. On Sight and insight : A journey into the world of blindness. I like your posts. With best wishes.
June 16, 2017 at 8:42 am
Thank you so much! I am actually visiting the sister I write about. I will definitely read the books.
With Gratitude,
s
February 7, 2018 at 12:03 pm
Being a good person has NOTHING to do with it.
February 7, 2018 at 12:25 pm
Thank you!