In the years since I stopped working, I have made a point of avoiding the navigation of urban life as much as possible. I hide away. Frustration and fear are my constant companions. My vibrance has been sand papered away and I blame RP, folding myself secretly into the web of it’s darkening arms. I put on a brave face and pretend that having RP is no big deal, just an annoyance. And, then I have another collision which leads me to more thoughts about the white cane. I think it is mostly for other people because I don’t really need a cane. I am not that blind. Am I?
After my most recent collision in which I sustained injury, I decided, with the support of my amazing husband, that it was time to actually take the step and inquire about mobility training. I contacted my low vision specialist who told me that I had to have a current visual field test in order to qualify for cane training; I made the appointment.
My last visual field was at least 4 years ago and at the time, I had between 20 and 25 degrees of vision; it has to be 20 or less to qualify for the training. I had the test and waited for the results, knowing that I was facing a double edged sword. If my visual field results were the same as 4 years ago, I wouldn’t qualify for the training, and if I do qualify for the training, it means that my vision has deteriorated. Today I got the results. I qualify.
The news wasn’t surprising, but I was surprisingly upset. I suspected what the results would be, but I also secretly hoped they would be the same as 4 years ago. I had worked it all out in my head, the practical reasons for getting a cane, but I hadn’t really thought about how it would make me feel. I stared at the subject line of the message, terrified to read the email. I sat at my desk, my breath knocked out of me, as panic escaped from my chest uncontrollably. When I finally got the courage and read the results, tears ran desperately down my cheeks. How can I be blind enough to need a white cane?
August 4, 2016 at 4:36 am
I find the slow decline in my ability to act in the world difficult. I also find it is a challenge for most folks to have real empathy for train wrecks that proceed slowly. Yet, reading this post I am left wondering what I might say that would offer comfort. Thank you for sharing your journey with us.
August 4, 2016 at 10:19 am
Your beautiful blog and your comments on my posts give me comfort. Thank you.
August 5, 2016 at 1:15 pm
I am glad!
August 4, 2016 at 6:22 am
Thank you for continuing to share your journey. Let me know what support you need from me, even though I am here in Seattle. I love you to pieces! XO
August 4, 2016 at 10:16 am
Thank you for your support; I feel it strongly even though miles separate us. Love you Beautiful Lady!
August 7, 2016 at 5:38 pm
I was thinking if I have reach your situation, what will I do to comfort myself? Maybe I ll tell myself I can set new adventure with my white cane. I believe we lost our vision slowly but we gain the strength to be stronger. Hugs
August 7, 2016 at 7:06 pm
Thank you! My husband found something called Cane Fu – defense training for people with support canes. I am seriously thinking about doing it. I have always wanted to do martial arts and now I can do it with my cane, just like DareDevil.
February 7, 2018 at 11:55 am
I have often told others the following: There are only 2 bad things in this world.
One of them is NOT getting what you want.
The other is GETTING what you want.
We humans are just pretty fucked up from the git-go aren’t we?
February 7, 2018 at 12:21 pm
We are. Our heads are constantly fucking with us.