When you have RP, you literally become one of the walking wounded. Walls, chairs, tables, foot stools, fire hydrants, small children, shopping carts, wet floor signs, shoes, cupboard doors, store mannequins and so much more, jump out at you from seemingly nowhere and the result is often injury. I am almost always bruised from bumping into things during the day, and often have scrapes as well. Most recently, I seem to be on a roll of injuring my head and face.
My lower field of vision seems to be where I run into the most trouble. Just to clarify: If I sit with my hands in my lap and slowly raise them in the air, I don’t see even a glimmer of them until they are level with my bottom lip. I am told that most people can see their hands in their laps while looking straight ahead. So, as you can imagine, when the world below is pretty much non-existent and the world above and to the side is just barely there, disaster is imminent.
My two most recent head injuries occurred while attempting to pick up dog toys from the floor. The first was when the huge black dresser in my bedroom jumped up and smacked me quite hard on the forehead. The room spun round for a minute and stars danced in front of my eyes and then the pounding began. Luckily, I was left with only an unsightly bump and a lingering headache. The crazy thing is that I know the dresser in there, I just have some serious spacial relationship issues and of course that pesky blind thing.
The second collision was with a wrought iron chair in the living room. I bent down (apparently quite quickly) to retrieve a stuffed dragon from the floor and the next thing I knew, the bridge of my nose had become intimate with the cruel iron of the dining room chair. It wasn’t the first time this particular chair had jumped rudely into my path, but it is usually my toes and feet that suffer injury from the chair’s legs. I have been meaning to get rid of that damn chair.
The culprit involved in my face injury was a glass cat food bowl. I suffer from a touch of OCD and I have to pick up the cat food bowls and put them in the sink as soon as the cats have finished eating, and I sometimes do this with a bit of panic. On the morning of the collision, my husband was home and wanting to help out; little did I know, he had already gone to pick up the cat’s bowl and because he was bent down I of course didn’t see him. I was bending down to pick up the bowl and he was standing up with the bowl and the result was a collision between my eye and a glass bowl. I have to admit, I freaked out a bit about this one. Because I have such an array of issues with my eyes, any injury, no matter how small, to either of my eyes makes me freak out. When the edge of the bowl made contact with my eye, I remember feeling a burning pain and pressure and everything went blurry. I immediately started panicking and crying and my poor husband felt terrible, even though it was so not his fault. Eventually, I calmed down and my vision cleared and the burning stopped and all I was left with was a cut on my nose and a bruise in the corner just outside my eye.
Sometimes, especially at home, I move through the rooms as if I can see normally; I am going to have to seriously start thinking about moving more slowly through the world. My face and head will thank me, not to mention my toes, feet, fingers and hands.
August 6, 2013 at 3:58 pm
A wrought iron chair? I would have left blood on that thing. When things seemingly come out of nowhere, it is hard to stay injury free. I developed an ice pack preference b/c of it: only packs that will bend as they melt, none of those hard shell ones.
August 15, 2013 at 2:18 pm
I love those soft ice packs and I still have the damn chair; it is all cool and retro and I can’t seem to part with it.
August 18, 2013 at 9:20 pm
Congratulations. I love reading your blog and nominated you for the Liebster Award. See my post at: http://thewayeyeseetheworld.wordpress.com/wp-admin/post.php?post=1727&action=edit&message=6&postpost=v2
August 27, 2013 at 3:33 pm
This is so cool. Thank you. And thank you for your amazing and prolific writing; you are an inspiration in so many ways.
November 17, 2013 at 8:43 am
Interesting to find your blog. My husband has a similar degen. ret. disease and is legally blind. We work in HR in a faith based non profit organization. My husband wears a hat everywhere for some protection for his head. THe cane has helped keep his shins from so many cuts and bruises but… furniture at home and other things can be a problem including my head or body getting in the way!! I am glad to find your blog as I have been wondering about writing one myself and wanted to see if others were writing about a journey with vision loss.
January 22, 2014 at 4:21 pm
I would be really interested to read about vision loss from the perspective of the spouse or partner of the visually impaired person. Please start a blog and I will definitely follow you.
March 2, 2014 at 7:56 am
Hello: Your posts are very touching indeed. My name is Subramani, am an R.P. patient who had total blindness after having diagnosed of R.P. in 1988 aged 15. My experiences are very typical of progressive vision loss patients in India. Please read my posts at grapplingwithrp.wordpress.com and also my book “Lights Out”, a blow by blow account of my loss of sight due to R.P. and how it impacted my family (available with amazon.us, amazon.uk and amazon.in). It is important we share and exchange information about R.P. and living with the condition and how it tallies across contries/continents. Thanks for the wonderful blog. Feeling very nice and touched reading your account.
April 8, 2014 at 1:47 pm
Hello, I need some help, I’m researching RP, and I need some help with a project which I’m working on at the moment. Do you have an email address which I could reach you on?
May 13, 2014 at 4:15 pm
Hi Melvin –
You can email me at floweringinkblogs@yahoo.com
February 5, 2018 at 7:23 pm
You mentioned on one of my posts my need to find the humor. I sense you have this as well, it has just been beaten down a bit more than in me. It’s still there though.
February 6, 2018 at 3:29 am
Thank you for recognizing this; I know it can feel like my writing is all doom and gloom, but it has its humorous moments, or at least I try and give it that, so I am grateful you see it!
February 6, 2018 at 6:10 am
I can see that…you did tend to write how you had nothing to write and felt down…but hey there is a REASON you felt that way. You also forged ahead.
February 6, 2018 at 6:28 am
Life has so many dips and curves, so much we can never be prepared for; I think there is incredible beauty in the vulnerability of that.