Stories From the Edge of Blindness

In 2002, Retinitis Pigmentosa changed my life. This is my story of a slow approach to darkness.


May 2011


We all have heroes; people we look up to for their courage, kindness and strength.  One of my heroes was just three years old when I was born.  He is my brother John. John has always been one of the... Continue Reading →

Tiny Terrors II

So, it seems my Tiny Terrors post was a bit unfinished; sometimes I forget that just because I know the conclusion of something, doesn't mean other people do.  Where did it end.......ok, on the bed in the dark, panic attack,... Continue Reading →

Little House

When you get hit, as an adult, with something like RP, you inevitably start to reflect on your past and possible signs that might have been there to indicate something was amiss; both physical and psychic signs.  As a child,... Continue Reading →

Tiny Terrors

There are periods of time in the Purgatory of Sight when weeks can pass without event and you seem to be settling as comfortably as possible into your current state of vision.  Then boom, something comes (literally) out of your... Continue Reading →

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