I am a forty one year old woman, always lived a bit on the edge and I have a lot of tattoos. I started getting really heavily tattooed when I was in my middle to late thirties, after my RP diagnosis. You may wonder what the hell getting tattooed has to do with going blind, or maybe why the hell a blind chick would want to get tattooed when she won’t even be able to see all the gorgeous artwork. I have discovered that for me, getting tattooed is definitely connected to having RP. It is about taking control over a body that is betraying me; about exercising the choice to mark and beautify my skin because I have no choices when it comes to my vision. Being tattooed empowers me and makes me happy. It is a brightness, literally, in a world that is going dark.
I am a writer, going blind in Los Angeles. This blog is my story of a slow approach to darkness as I traverse through the rubble of urban life. It is what I see in the withering spaces of my remaining vision. It is humor and despair and darkness and light. It is what I witness as the world slowly disappears.
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