Stories From the Edge of Blindness

In 2002, Retinitis Pigmentosa changed my life. This is my story of a slow approach to darkness.


July 2010


One of the most significant rites of passage in an RPer's life is surrendering the driving license.  I was a terrible driver who never liked being behind the wheel much anyway, but living in Los Angeles, I have definitely felt... Continue Reading →

Good News

So I went for my visual field and the doctor told me that my peripheral vision is holding and has been stable for the past five years.  This is really wonderful news and I feel so lucky.  It reminds me... Continue Reading →

Waiting for my Sentence

It has been three years since my last visual field test and in three days I have an appointment with my specialist and the big white dome.  The last time my fields were tested, I had about twenty degrees of... Continue Reading →

Invisible Disability

At this point in my RP journey, I am sans mobility devices;  no white cane, no seeing eye dog, no glaringly obvious low vision contraptions.  I still have about 20 degrees of peripheral vision in each eye; and yet I... Continue Reading →

City of Devils

Los Angeles for the nearly blind is hardly the city of angels; more like a metropolis of devilish trickery and accidents waiting to happen. In a city where your car defines you, riding the so called metro is practically unheard... Continue Reading →


I am a forty one year old woman, always lived a bit on the edge and I have a lot of tattoos.  I started getting really heavily tattooed when I was in my middle to late thirties, after my RP... Continue Reading →

Dark Days

So I told myself when I started this blog that I wasn't going to be  maudlin or depressive, but the truth is that when you have a disease like RP, it is impossible to avoid the dark days (literally and figuratively).... Continue Reading →

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