Stories From the Edge of Blindness

In 2002, Retinitis Pigmentosa changed my life. This is my story of a slow approach to darkness.


June 2010

The Honest Blind Truth

So the truth: going blind sucks.  It isn't a gift or a renewal on life or a connection to some fucking deity; it just sucks.  It sucks because I can't do an errand like a normal person; jump in the... Continue Reading →


A year after Dx day, I returned to Jules Stein for my 1 year follow up appointment.  Dr. Heckenlively had moved on to more research oriented pastures and I had been shuffled off to Dr. Sarraf, who I guess had... Continue Reading →

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