Stories From the Edge of Blindness

In 2002, Retinitis Pigmentosa changed my life. This is my story of a slow approach to darkness.


May 2010

Eye Drop Aftermath

On the day of my diagnosis and the sparkly intro to the world of RP, people kept putting drops in my eyes.  Everyone seemed to want to make sure that I had received enough drops to ensure maximum retinal view.... Continue Reading →

Wishing for Syphilis

Syphilis?  I could have Syphilis rather than a life sentencing, incurable, degenerative blinding disease?  Ok.  I'll take syphilis. But of course I didn't have syphilis; I just wished for it for those few moments.  Can you imagine having a disease... Continue Reading →

Dx Day: The Man Himself

After the Clockwork Orange experience, I was dismissed for lunch.  I walked out of the test room, with help from the tech, and met my dad in the waiting room.  I felt pretty traumatized at this point and my eyes... Continue Reading →

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